Providing support and information to the UK anorectal malformation community.

What we do

Max’s Trust provides support and information to adults, children and families who are affected by anorectal malformations in the UK. We also fundraise, hold events and conferences and take part in research projects.

Max Finnigan

Max was born with an anorectal malformation in 2017. His sudden death when he was 17 months old inspired the creation of the UK’s first anorectal malformation charity, by his parents and others affected by ARM.


Anorectal malformations are a group of malformations where the anus and rectum don’t develop properly. It is a congenital condition occurring in early pregnancy while the baby is developing and affects 1 in 4,000 to 5,000 births.

Quick links


Find all the latest news research and developments from Max’s Trust and the anorectal malformation community.


Support Max’s Trust by holding your own fundraiser with family, friends and colleagues, or by making a donation.


Find out about all the events that we take part in and host, including our popular annual conference


We support research projects aimed at improving the lives of those affected by anorectal malformations.


As well as providing support, we collaborate with other organisations both in the UK and Internationally.


Our trustees work hard to improve the lives of the ARM community - meet the team behind the scenes at Max’s Trust.

About Max

On the last day of a very hot June 2017 Max Freddie Finnigan arrived, bang on time, at the John Radcliffe Hospital, Oxford. All 10 gorgeous pounds of him!

Because of our Trustees we are doing more good for more people!

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