Providing support and information to the UK anorectal malformation community.
What we do
Max’s Trust provides support and information to adults, children and families who are affected by anorectal malformations in the UK. We also fundraise, hold events and conferences and take part in research projects.
Max was born with an anorectal malformation in 2017. His sudden death when he was 17 months old inspired the creation of the UK’s first anorectal malformation charity, by his parents and others affected by ARM.
Anorectal malformations are a group of malformations where the anus and rectum don’t develop properly. It is a congenital condition occurring in early pregnancy while the baby is developing and affects 1 in 4,000 to 5,000 births.