Celebrate the launch of our new website today, on the first International ARM Day!
Welcome
We are Max's Trust, a dedicated charity for individuals affected by Anorectal Malformation.
Our mission is to provide vital information, share personal stories, and foster a supportive community where you can feel confident and understood.
Here, you're not alone; we are here to stand by you every step of the way. Join us in creating a space of support and connection!
Who are we?
Max's Trust is run by a small, but dedicated team of volunteers. We each came to Max's Trust through different journeys. Some of us were born with ARM, some support family members living with it and others are friends with someone affected.
We all work together with individuals and families impacted by ARM, as well as medical professionals. Through this collaboration we have created a website with important medical information as well as signposts to other essential organisations who also offer support. We also host in-person events, bringing together a wealth of knowledge and shared lived experience.
With gratitude to our medical professionals
We at Max’s Trust extend our heartfelt thanks to all those who have contributed to the development of this website. Medical guidance was kindly provided by:
Jonathan Sutcliffe, Consultant Paediatric Surgeon, Leeds Teaching Hospitals NHS Trust.
Kathryn Ford, Consultant in Paediatric Surgery, Great Ormond Street for Children NHS Foundation Trust.
Specialist nursing advice was generously shared by Claire Bohr, Paediatric Stoma Nurse Specialist, Bristol Royal Hospital for Children.
We are also grateful to Richard J. Wood, MD, Chief of Colorectal and Pelvic Reconstructive Surgery, Nationwide Children’s Hospital, Columbus, Ohio, USA, for providing the images reproduced on this site.
Finally, we sincerely thank all our members both adults born with ARM and parents of children born with ARM, whose courage, honesty, and willingness to share their journeys have helped shape this resource with compassion and understanding. Your trust, support, and partnership have been invaluable.
